Faculty mentor: Mark Bromberg
The goal of this project was to understand the awareness and knowledge of ALS and key terms related to ALS among newly diagnosed patients, family, and friends. Some areas of focus were knowledge of someone with ALS prior to their first visit to the multidisciplinary clinic, understanding of body parts affected by ALS, and where individuals prefer to obtain information about the disease. Some limitations, were a small sample size, and singe location for data collection.
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