Poster #25: Hannah Mundinger – Rare Disease, the Diagnostic Odyssey, and Normality Reconstruction

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Faculty mentor: Kimberly Kaphingst

Little is known on how the delayed diagnosis of rare genetic disorders within the adult population impacts individuals’ understanding of self and psychological health. This qualitative study examines the impact of receiving a diagnosis of Ehlers Danlos Syndrome (EDS), a constellation of rare heritable connective tissue disorders, on construction of normality and illuminates a connection between diagnostic delay and psychological outcomes.

Click below to hear me present my poster!
Questions or comments? Contact me at: hlmundinger@gmail.com

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